Events, projects, and up-to-date congregational news.
One SMALL Step for Prader-Willi Syndrome
Prader-Willi Syndrome is a complex genetic condition that affects many parts of the body. In infancy, this condition is characterized by weak muscle tone (hypotonia), feeding difficulties, poor growth, and delayed development. Beginning in childhood, affected individuals develop an insatiable appetite, which leads to chronic overeating (hyperphagia) and obesity. Some people with Prader-Willi Syndrome, particularly those with obesity, also develop Type-2 diabetes mellitus (the most common form of diabetes).
Karen Lawrence's Sister, Susan Long, has a grand daughter with this condition. She is helping to raise money for the Foundation for Prader-Willi Research. All proceeds from the One SMALL Step walks go to fund the Prader-Willi Syndrome Research Plan jointly created by FPWR and PWSAUSA. Learn more about PWS and this event at http://www.fpwr.org/
Saturday, July 14th there will be a 2K walk / 5K race at Chestnut Ridge Park. If you are interested in taking part in this event, registration begins at 9 am and the walk/race starts at 10 am. There will also be a silent auction, basket raffle, children's activities, plus a free lunch! All kids are free.
Or if you would like to make a pledge to Susan as she and Karen partake in this walk/race, please go to her site:
, where you can make a donation online. Or if you prefer, donations can be made to her directly.
Her personal goal is $500.